About Crohn’s disease
Crohn’s disease is a type of inflammatory bowel disease.
People with Crohn’s disease have chronic inflammation in their digestive tracts. The inflammation mostly happens in the large and small bowel, but it can be anywhere in the digestive tract, which goes from the mouth to the anus.
Crohn’s disease can lead to bowel damage, which can lead to further complications.
Crohn’s disease is becoming more commonly diagnosed in children. About one-quarter of people with Crohn’s disease are diagnosed before they’re 18 years old.
Signs and symptoms of Crohn’s disease
Crohn’s disease can cause many signs and symptoms in different parts of the digestive tract.
These signs and symptoms include:
- stomach pain
- bleeding from the bottom
- diarrhoea
- constipation
- vomiting and nausea
- abscesses or fistulas around the anus
- mouth ulcers.
It can also cause general health and wellbeing symptoms, like:
- fever
- extreme tiredness
- weight loss
- reduced appetite
- delayed growth and development
- delayed puberty.
It’s common for Crohn’s disease symptoms to flare up for a while and then go away again.
If the inflammation is in the small bowel, it can make it hard for children to digest and absorb nutrients from food. This is why Crohn’s disease can affect children’s growth and development.
Medical help: when to get it for children and teenagers with Crohn’s disease symptoms
See your GP if your child has any of the signs and symptoms of Crohn’s disease.
If your GP thinks your child’s symptoms might be caused by Crohn’s disease, your GP will refer your child to a gastroenterologist for further assessment.
Tests for Crohn’s disease
The gastroenterologist will order blood and poo tests to help with diagnosing Crohn’s disease.
The gastroenterologist will probably also do an endoscopy. In an endoscopy, your gastroenterologist will insert a flexible tube with a camera into your child’s digestive tract to look for inflammation and ulcers and take small tissue samples. The procedure is done under general anaesthetic.
Your doctor might also order an ultrasound or an MRI scan.
Treatment for Crohn’s disease
There’s currently no cure for Crohn’s disease, but its symptoms can be treated, often very effectively.
Treatment aims to:
- control the inflammation that causes symptoms
- relieve the symptoms
- limit the number of flare-ups and how long they last
- reduce the effect of the condition on school, sport and social activities
- support your child’s emotional wellbeing.
Each child with Crohn’s disease needs an individualised treatment plan. This is because treatment depends on which part of the child’s bowel is affected, how severe it is, how old the child is, and whether the child has any other medical conditions.
In general, treatment might include medicines to reduce inflammation, diarrhoea and pain. Your child might also need nutritional supplements to help with growth and development.
Rarely, people need surgery for Crohn’s disease to remove sections of the bowel that are severely affected, damaged or causing complications. Your doctor will talk about this with you and your child if it’s necessary.
Managing Crohn’s disease
When Crohn’s disease is well managed, people can go for long periods of time with few or no symptoms. But sometimes the symptoms can flare up and make life uncomfortable.
There are things your child can do that might reduce the severity of Crohn’s disease symptoms and its flare-ups:
- Minimise exposure to smoke. Make sure no-one smokes around your child, and try to make sure your child doesn’t smoke.
- Avoid foods that make them feel sick or worsen their symptoms.
- Eat a well-balanced, healthy diet, and limit processed foods like cakes, biscuits, chips and fried foods.
- Take medicines as prescribed.
- Attend all appointments with the gastroenterologist. Make sure your child discusses new symptoms and how they’ve been managing them.
- Get annual flu vaccinations.
There are also things you can do to make it easier for your child to manage the symptoms of Crohn’s disease at school. For example, sometimes your child might experience diarrhoea at school. It’s a good idea to let school staff know about this issue, so they can make sure your child can reach the toilet quickly and easily throughout the day.
It might also be handy for your child to keep some emergency clothes, wipes and deodorant in their bag in case they accidentally soil themselves.
Causes of Crohn’s disease
We don’t know the exact cause of Crohn’s disease. There might be genetic and environmental factors involved.