About respite care for children with disability, ASD and additional needs
Respite care is when someone looks after your child with disability, autism spectrum disorder (ASD) or other additional needs.
Respite care can be for a few hours during the day. It can also be overnight or for longer periods like a few weeks. You might use respite care occasionally or on a regular basis. Your child can be cared for in your home or somewhere else.
You can get respite care from respite care services. Or you might arrange something informally with family and friends, or use community recreational activities.
Why respite care for children is good for families
It can be hard to take a break from caring for your child. But it’s good for you, your family and your child.
Caring can be stressful and emotionally and physically tiring. Taking a break gives you the chance to recharge and look after yourself. For example, you could go to a weekly exercise class, meet friends, go out for dinner with your partner, get an uninterrupted night’s sleep once a week, or go on holiday.
Taking a break can also give you a chance to spend time with your partner or other children.
Respite care is also a break for your child. Your child can have a change from her usual routine and do something different. This can help her develop new skills and some independence.
Formal respite care services
You might have a range of respite options depending on where you live, how old your child is, what your child needs and what you want to get out of respite care. Many respite services have waiting lists, so it’s a good idea to plan ahead.
This is when a carer comes to your home to care for your child. You might get care for a few hours once a week, for longer periods, or overnight. The person might stay at home with your child or take him out – for example, to a local park.
This is when your child goes to a centre to be cared for in a group for part of the day. Centres or clubs often organise group activities, outings and holiday care programs.
Community access respite
This kind of respite gets your child involved in activities that can help her develop independent living and social skills. This could be a group in a neighbourhood house or at a community health centre. Or a support worker might go with you as a family to help you join in with a community activity.
This is when your child stays at a residential care home or at a cottage-style respite house. It might be overnight or for a longer stay.
Informal respite care
Formal respite care services might not suit your family, or they might be difficult for you to access. There are other options that can give you a break.
Family and friends
You could ask family and friends to look after your child while you go out for the evening, or go to an appointment. You might find it hard to ask for or accept help when it’s offered, but people who care about you and your child will want to support you.
It can help to be specific about what you need. For example, you might say, ‘Can you look after Lachlan on Monday evening, please? I’d like to go to the cinema’.
After-school and vacation care
These services offer fun and inclusive activities for school-age children. They might be offered by your child’s school or by other providers like the YMCA. These services can get support to include children with additional needs through the Australian Government’s Inclusion Support Program.
Music classes, story time at the local library, Scouts, Guides, sports clubs and other community groups can give your child something fun to get involved in. They can also be an opportunity for you to have a break and connect with other local parents. You’ll need to ask whether these activities and organisations accommodate children with additional needs.
Some government-funded and community organisations run camps specifically for children with additional needs.
Mainstream child care
Long day care centres, family day care and occasional care services can get support to include children with additional needs through the Australian Government’s Inclusion Support Program.
Emergency respite care for children
Most respite care services need to be booked in advance, but you might be able to get emergency and short-term crisis care if you’re unexpectedly unable to care for your child – for example, if you’re ill.
Emergency respite care might be for a few hours, overnight or for several days or more.
Here’s how to find out about emergency respite care in your area:
- Call your local Commonwealth Respite and Carelink Centre on 1800 052 222 during business hours, or on 1800 059 059 for emergency respite support at other times.
- Contact the Carer Gateway on 1800 422 737, Monday to Friday 8 am-6 pm.
Funding for respite care
Some respite care services are free, but you’ll need to pay for others. The cost depends on the type of respite care, the provider and the length of time involved.
If your child is eligible for the NDIS, you can talk to your NDIS professional about your child’s and family’s needs.
The NDIS might fund supports that let you take a break from your caring responsibilities. For example, these supports might include help with personal care tasks, or strategies that build your child’s skills and ability to take part in social and community activities.
If your child isn’t eligible for the NDIS, you might be able to get other funding to help with the cost of respite. Call your local Commonwealth Respite and Carelink Centre on 1800 052 222 to find out more.
Finding respite care
To find out about respite care options in your local area, you can contact: