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just diagnosed ASD high range age 2 Expand / Collapse
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Posted 20/04/2012 9:04:33 PM
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Hi all,

As being new to this i am unsure what to say or how to say things, but will tell you the story to what brought us the concerns and diagnosis.

Well my son Isaac age 2 was born healthy normal with no concerns (to my knowledge, not that i was told nor the nurses care).

when Isaac reached 8 months i started to worry as he started banging his head, took him to his paediatrician and got blown off that my boy was fine he will grow out of it and to let him go he will stop when it hurts, (concerned about his head i hated him doing it) the continuous tantrums and punching was getting harder everyday. He would bash his on anything ranging from carpet, cement, tiles anything! Getting bruise after bruise, bump after bump, as long as it hurt he continues doing it.

He was starting to bring out some words but when he was 1 it all stopped, even to this day is blubba. What set me off to something not being right was when Isaac put his head through a glass panel in a door.

With going back and forward to our paediatrican and getting nowhere/ brushed off, we got put through to a family support organisation who have been great, they put us through to Bridges for learning who accessed him to find he was on the ASD spectrum, he has been doing speech therapy and so far hasn't changed but only been 3 times. Also about to start development therapy.

his phycologist is who has Diagnosed him with very elevated ASD scoring 80 across the whole spectrum.

2 days down with the diagnosis and have cried probably 4 times, now knowing what i am set to deal with Im scared and sad for Isaac but so relieved we have an answer but i had to do some serious fighting to get through that i wasn't a hypo-condriact/ bad mother.

Isaac is also due to go to sleep clinic for his sleeping so hopefully we can get some more answers out of that soon.

Very interested for any advice to try and help Isaac but also myself. i will take any help i can get.

Thanks :-) Sarah, son Isaac aged 2.
Post #67359
Posted 20/04/2012 10:00:08 PM
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Sorry don't have any advice as we are at the start of our journey but wanted you to know that I have read your story and wanted to send you some hugs.

gorgeous DD1 10yo LD  +  beautiful DD2 3.5yo ASD = house full of love and laughter
Post #67362
Posted 21/04/2012 10:42:45 AM
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Thanks Ellie.

sending you hugs back being the start of your journey.
Post #67370
Posted 21/04/2012 12:29:55 PM


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Hi Sarah and welcome.  My son was also diagnosed at 2yrs 2mths (after I to got the neurotic hypochondriac mother thing from the health nurses when i initially brought the subject up when he was 8mths so I know how you feel).  My ds had very little language at 2 mostly babble with a few words thrown in although the words were not functional, he didnt know the meaning of them even though he could say them.

My son has just turned 4, he is still very delayed but he is starting to say quite a few sentences and can usually get his point accross.  We have done quite a bit of early intervention (speech, OT, group programs etc) and they have all been very helpful.  The fact your son has been diagnosed at such a young age is fantastic in that you will be able to get alot of services and have that extra time to help him before he goes to school.  It is a hard journey but the results will be worthwhile.  If your on facebook add me here http://www.facebook.com/#!/profile.php?id=731033614 (please also send a message explaining who you are) and I can add you to our facebook group as well.  Goodluck xoxo

Manda, mummy to

DS -Mr Noisy - 6yrs- dx ASD

DD -Little Miss Attitude - almost 3 - dx ASD

Post #67375
Posted 21/04/2012 2:08:05 PM
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Thank you :-) i have added you :-) it took alot to get anything out of anyone the paed just kept sending me away because he didnt see it (spending all of 3 minute with him after 3-4 months waiting for an appointment.

ive been reading others stories and things about it and i think ive overloaded with information that i didnt know about.

Thankfully my family is starting to understand that it has been hard hearing that i wasnt doing the right thing, now knowing what is going on that it wasnt me they are starting to come to terms with it just like me and my partner.

:-)
Post #67376
Posted 21/04/2012 7:06:50 PM
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Hi and welcome to the forum. I feel for you as I have been there and understand what a traumatic experience diagnosis is. You were better then me as I lay on the couch in my pyjamas for 3 days after diagnosis and I wont tell you how many glasses of wine I had on the evening of the actual diagnosis

My son is now 5, and he talks, socialises and is getting ready for mainsteam school next year only one year late. Early intervention (we do ABA) has been amazingly effective and although my worries are not over, I am glad I am not where we were when DS was 2. Things get better.

As Proudmumma said, you have done a great job (and brave) getting his diagnosis so young (and heartbreakingly so) at 2. You now have the very best opportunity to get him going. And you will. Learning deficits connected to ASD can be improved immensely.

Dont expect the world from ST. We went for years before seeing anything much. The key point with ST is that they are teaching you how to teach him to talk. What you do at home is important. DS didnt talk at all until 3 and he is now almost caught up to his peers at 5.

Have you applied for the funding yet that comes along with your diagnosis ? Ask the person that gave you the dx about this. That opens doors for intervention. Feel free to ask questons here about getting that going. You have come to the right place.

Hang in there, it gets better

Mum to Nick 5 ASD

Post #67377
Posted 21/04/2012 7:52:43 PM
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Its funny when he goes to ST he acts like nothing is wrong (more frustrating) but the man working with him is great, more suprising about the diagnosis is that it came from the Phycologist which freaked me out more. He also is VERY clingy to a friends son who is 14 and ADD, when he see's him i am obsolete, which is something that tipped me off abit more.

I think i went through about half a pack of smokes when i found out (as i dont drink :-( ), ive tryed not to let it get to me toomuch (easier said then done) but i just keep thinking least the diagnosis is there and im not crazy about everything.

I have been told something about funding but not sure what it is or anything im getting informed on tuesday when he goes for ST. Ive been trying not to think about that as low income and had to move to a much more expensive house as our health was getting hurt from mold covering the house, does anyone know if this contributes to any issues with it?

Sarah Mum of Isaac 2
Post #67379
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