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Forum Newbie
Group: Forum Members
Last Login: 3/07/2011 4:42:30 PM
Posts: 4,
Visits: 8
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hi i have 2 kids with special needs, my 5 yr old son has autism & developmental delay but he is going fine. just my 4 yr old son he has pddnos, plus cp & global developmental delay & has just be told he also has rumination disorder & nw they wanna put a feeding tube in cause he is nt gaining weight.. just wanted 2 knw if there were any parents out there with the sam problem.. this is my first time having a child with a feeding tube & im just stressing out on how it is going to go & if it works..
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Supreme Being
Group: Forum Members
Last Login: 3/03/2013 6:01:03 PM
Posts: 2,673,
Visits: 8,609
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Dear mummy26, Hi. My eldest son is 9yrs old, he has Autism, is intellectually impaired and until the age of 7 1/2yrs was totally non-verbal. My youngest son is 6yrs old, has Autism (high functioning like Aspergers), ADD and Global Development Delay. If you scroll down further at this wonderful website to the Forum 'Parents of children with Autism Spectrum Disorder (ASD)' you will find many of us.
Can you talk to your local hospital to find out if there are support groups for parents of children with feeding tubes? Or even your Carers organisation within your State/Territory?
Please keep asking for help.
Mum to DS10 1/2yrs, II ASD and DS8yrs, HF.ASD,ADD,GDD.
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Forum Newbie
Group: Forum Members
Last Login: 3/07/2011 4:42:30 PM
Posts: 4,
Visits: 8
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hi, thanks for the advise, we have just been told that the feeding tube in the nose is nt gonna work he will just keep pulling it out so nw we r on a waiting list 2 get the tube put into the stomach.. we were told that it could take up 2 12months before they can even do it..
he is nearly 5 & he does nt have any verbal words & we were told that he might nt at all talk..
he was getting speach & ot but with his medical problems they told me that they cant do anything till then so it could be yrs before they can even help him..
im gonna find out if there is any support groups around, but i dnt go out much i just like 2 keep 2 myself cause i dnt like the way people look at my son..
my son is such a lovely & caring kid but people just look at him funny so i dnt like taking him places but nw hopefully that he is starting a special school with kids with needs that they can try & get him to talk...
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Forum Newbie
Group: Forum Members
Last Login: 22/06/2012 7:44:36 PM
Posts: 2,
Visits: 5
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Hi. My daughter had a mic-key button (and ng, and peg) for years. If you have any questions, feel free to ask 
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